Amy & Friends

Amy & Friends 

Amy & Friends

Description

Welcome to Amy and Friends, supporting children/young people/families/carers suffering from DNA repair disorders in childhood, including Cockayne Syndrome (CS), Trichothiodystrophy (TTD). Our mission statement “We are committed to improving the lives of individuals affected by DNA repair disorders in childhood, with compassion and through a family centred approach. With our network of dedicated staff, volunteers and expert medical professionals, we provide practical and emotional support, information, and education whilst promoting and engaging with groundbreaking research in the UK and internationally”.

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NWS

NWS

Member since 5 years ago
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